The Gynaecological Cancer Patients National Coalition
Gynsam is a nonprofit making organization that is religiously and politically independent. Our aim is to support women with gynaecological cancer and their relatives. We also aim to influence politicians and others in decision making positions as well as public opinion so that:
• a common care plan and common guidelines are established throughout Sweden
• all women regardless of where they live shall have access to the latest and best care available for gynaecological cancer
• preventive measures such as health checks and screening are developed and carried out
• all patients are offered rehabilitation
Gynsam, was founded on April 15, 2000 by three local member organizations, Gynaecological cancer patient associations: Viola (Skåne), GCF Musslan (Värmland) and GCF Linnea (Medelpad). It was hoped that co-operation between the member associations would be more effective when dealing with common issues.
Today Gynsam is made up of twelve gynaecological cancer patient associations and a number of individual members. Gynsam is working towards forming several more associations within a near future. By creating new associations and increasing the membership Gynsam will be able to exercise greater influence over issues of policy of great importance to women with gynaecological cancer.
The local gynaecological cancer associations’ prime task is to offer support to women with gynaecological cancer. These associations make it possible for the members to meet, get to know one another and support one another by arranging association meetings and activities such as lectures. The associations also offer help from trained support workers.
As the representative of the collected patient associations, Gynsam is the lobbying body that can also comment on government proposals. Gynsam is responsible for information and for disseminating knowledge about gynaecological cancer to the public. Gynsam trains the organizations’ support workers.
Falling ill with cancer is a traumatic event in the life of a woman and her family. All Gynsam’s support workers have themselves had a gynaecological cancer or are relatives of people who have had such a cancer. They know from personal experience how important it is to have someone to talk to about one’s situation. Our support workers have a moral duty of silence and in the case of medical issues refer members to care professionals. They can all be reached via their home telephone numbers or via Gynsam’s home page under the link stödpersonsverksamhet.
Gynsam publishes the membership journal, Gynsamposten, which comes out four times a year. There is also a folder in English which can be ordered from email@example.com. (Please give your name and address and the number of copies required.)
NYCK –the Network for young women with a cancer diagnosis
Belonging to Gynsam is a network for young women who have, or have had, a gynaecological cancer. Through NYCK they can share their experiences with others. There is a link to this group on Gynsam’s home page.